Pinned toot

We got “No access. No peace.” stickers to give away.

If you like some you can send me a private message.

[Box with 3000 stickers saying “No access. No peace.” With a wheelchair logo where the wheel is an anarchy A.]

Pinned toot

<— Many thanks to @TQ for this new avatar 😀

Pinned toot

I’ll use this account for mostly unlisted toots from now on. Topics might be mostly my experiences of discrimination in Germany of my kid with , of with kids and kids with disabilities and in general. There will be lot of school, medicine and other authorities.

lila hopes boosted

Kinderfeindlichkeit, schimpfen, - 

Immer nach unten hacken. Unwissen und (Noch-)Nicht-Können muss bestraft werden? Scheisz kinderfeindliche Gesellschaft. ich hasse es so sehr.

complaining, accessibility, shared flats, - 

Watch me how I apply for every reasonable “We want a family in our shared flat/house”- offer although so far none has been in the least wheelchair accessible.

lila hopes boosted

I appreciate sighted fediverse users concern about image descriptions and ways to be "screenreader friendly." Mostly I agree with you, maybe with quibbles but they're not worth trying to nitpick and I'm aware I'm not the sole authority, just one visually impaired person.

But sometimes you all end up talking to each other and I worry that some of the advice that makes me wince is getting solidified into prescriptivism. Please make sure visually impaired people are part of these conversations.

D, Berlin, demo link, no IPReG 

On Thursday 1:30pm a group of disabled people is organizing a protest in front of the Bundestag while the IPReG is supposed to get passed.

als-mobil.de/veranstaltung/562

lila hopes boosted

Re: ‪D, links regarding RISG/IPReG - 

Some sources on it in German. I couldn’t find anything short and striking. The §37c SGB V seems to be the main problem and should be stopped altogether:‬
‪ ‬
‪An open letter (but contains lots of ableism): ‬https://kobinet-nachrichten.org/2020/05/26/offener-brief-keine-zwangshospitalisierungen-unschuldiger-in-institutionen/

A 2h video of a discussion: ‬https://m.youtube.com/watch?v=QAhZZwoiv_8

11p detailed statement of a provider of institutionalized care:
bvkm.de/wp-content/uploads/202
0/04/bvkm_stellungnahme-zum-ipreg.pdf

Proposed legislation: ‬https://www.bundesgesundheitsministerium.de/fileadmin/Dateien/3_Downloads/Gesetze_und_Verordnungen/GuV/I/IPReG_Kabinett_120220.pdf

Show thread
lila hopes boosted

‪D, RISG/IPReG proposed legislation, reducing home care, threat to life, action pls, ableism, —‬ 

‪The proposed RISG/GKV-IPReG is deeply ableist, evil, unconstitutional and eugenicist. It further reduces professional home care and thereby threatens the lives and wellbeing and right to live their lives outside of institutions of a very vulnerable group.‬

‪If you have the resources, please look into it and help stop this. You could write to your local CDU/CSU or SPD and members of Bundestag.‬

D, de, BTHG und IPReG, - 

Erst das BTHG, was persönliche Assistenz im eigentlichen Sinne (es muss jetzt gepoolt werden, wenn das möglich ist) und den Grundsatz „ambulant vor stationär“ abgeschafft hat. Und jetzt in absehbarer Zukunft keine häusliche Intensivpflege mehr 😞 wann wird mal wieder was besser?

D, IPReG, just sad, - 

On 2. July the IPReG is scheduled to pass Bundestag 😞

Re: ‪D, links regarding RISG/IPReG - 

Some sources on it in German. I couldn’t find anything short and striking. The §37c SGB V seems to be the main problem and should be stopped altogether:‬
‪ ‬
‪An open letter (but contains lots of ableism): ‬https://kobinet-nachrichten.org/2020/05/26/offener-brief-keine-zwangshospitalisierungen-unschuldiger-in-institutionen/

A 2h video of a discussion: ‬https://m.youtube.com/watch?v=QAhZZwoiv_8

11p detailed statement of a provider of institutionalized care:
bvkm.de/wp-content/uploads/202
0/04/bvkm_stellungnahme-zum-ipreg.pdf

Proposed legislation: ‬https://www.bundesgesundheitsministerium.de/fileadmin/Dateien/3_Downloads/Gesetze_und_Verordnungen/GuV/I/IPReG_Kabinett_120220.pdf

Show thread

‪D, RISG/IPReG proposed legislation, reducing home care, threat to life, action pls, ableism, —‬ 

‪The proposed RISG/GKV-IPReG is deeply ableist, evil, unconstitutional and eugenicist. It further reduces professional home care and thereby threatens the lives and wellbeing and right to live their lives outside of institutions of a very vulnerable group.‬

‪If you have the resources, please look into it and help stop this. You could write to your local CDU/CSU or SPD and members of Bundestag.‬

accessibility, lockdown, ~ 

There just was a mail in a list about feeling
guilty to wanting a lockdown to last a bit longer because lockdown has, beneath a lot of problems, had brought accessibility on several levels that now is retreated. And: yes, I feel that, too. Lockdown sucks a lot. But I could participate in conferences and just bring/take my kindergarten kids to/from the kindergarten’s door. And even continuing my studies at a local university seemed in reach.

D, de, Link zu Sozialgerichtsurteil, Rassismus, Kürzung des Existenzminimums bei Geflüchteten, - 

Sozialgericht in Berlin höhlt das Existenzminimum aus, Prozesskostenhilfe wird verwehrt: tacheles-sozialhilfe.de/starts

People don’t have to provide answers when they point out problems. But I need answers because people who aren’t able-bodied adults exist.

De, no wheelchair accessible flats?, frustrated take on ableism, family 

I knew that people who need a wheelchair aren’t supposed to… live with family or the like, need to rent a flat, not have the money to accommodate ableism themselves etc.

Show thread

De, no wheelchair accessible flats? 

Just got a message from “one of the biggest housing companies in Germany” that they got 0 wheelchair accessible flats with 3 or 4 rooms beneath their 62.000 flats.

We are a family living with 3 kids and it’s kind of considered decent that every kid has their own room in Germany.

I am watching the housing situation and politics for years, so it’s not really a surprise, but so far I thought that maybe those flats are just very rare.

Re: kids’ tv show 

The twins aren’t bunnies. But I am not yet sure what they’re supposed to be 😅 Maybe cats 😌

Show thread

kids’ tv show, representation, + 

We found a netflix show (“Paprika” in German”) that features bunny twins and I showed it to the twins because I thought “How cool, twins!” And then I realized that one twin uses a wheelchair and I am hyped and my wheelchair using kid heard my remark and is very hyped now, too. It has no audio description but the wheelchair is audible so we are listening for it now all the time 😊

I so much hope the series isn’t bad.

de, Link, Barrierefreiheit von Online-Konferenz-Tools 

Link zu einem bedingt barrierefreien PDF: bag-selbsthilfe.de/fileadmin/u

In dem PDF ist ein Vergleich von Tools für Online-Konferenzen. In dem Vergleich geht es um die Barrierefreiheit der Tools. Die BAG Selbsthilfe hat den Vergleich gemacht.

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