A gene therapy for a very bad, but rare genetic diseas, that works perfectly, but is not profitable und thus not available.

@vollkorn that is obscene! There should be a "use it or lose it" rule for health patents.

@StuC @vollkorn I thought about that, too, but am not sure that would help. I think maybe the decoupling between researching and developing it to a market-ready drug is a hindrance?

@StuC @vollkorn

the would surely like to 'use it', but noone is willing to pay ;)

Bigger scandal is that even the researchers are not allowed to produce/distribute/give the information to another company..

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